Sipping Dom Pérignon Through a Straw: Notes on Disability, Defiance, and Joy

A memoir penned with one good finger, Ndopu writes about being profoundly disabled and profoundly successful.

Global humanitarian Eddie Ndopu was born with spinal muscular atrophy, a rare degenerative motor neuron disease affecting his mobility. He was told that he wouldn’t live beyond age five and yet, Ndopu thrived. He grew up loving pop music, lip syncing the latest hits, and watching The Bold and the Beautiful for the haute couture, and was the only wheelchair user at his school, where he flourished academically. By his late teens, he had become a sought after speaker, travelling the world to address audiences about disability justice. 

Ndopu was ecstatic when he was later accepted on a full scholarship into one of the world's most prestigious schools, Oxford University. But he soon learns that it's not just the medical community he must thwart— it's the educational one too.